A much cherished “miracle” of a ten-year-old boy who wasn't expected to survive his birth and was given days to live in January of 2020 has passed away peacefully at home surrounded by his family.
Tributes have been paid to Jamie Murray from Castle Lodge, Clondulane in Fermoy, Co Cork.
Born blind and deaf the youngster was diagnosed with alobar holoprosencephaly (HPE), a developmental condition categorised by a failure of the brain’s frontal lobe to separate into two distinct hemispheres. Jamie, who turned 10 on November 3, also suffered from scoliosis. He died on Saturday.
His devoted parents Mark and Helena gave their "little warrior" Jamie 24 hour care for all of his life. They are hugely grateful to the local community who raised in excess of €30,000 in recent years to fund private nurses to come in to the Murray home to help them with their son's physical needs. Such was the devotion of the nurses that they became family friends.
In a message on Rip.ie the family expressed gratitude for the outpouring of messages of "sympathy and support at this difficult time."
When contacted for the purpose of this tribute Helena said she simply wanted to “thank everyone for the fantastic memories.”
Jamie will lie in repose at Ronayne’s Funeral Home in Fermoy from 2.30pm to 4.30pm tomorrow, Monday. Reception will follow to St Patrick’s Church Fermoy with a requiem mass taking place at 2.30pm on Tuesday. Jamie will be laid to rest in Kilcrumper New cemetery.
Mourners are asked to donate to the Holy Family School in Charleville in lieu of flowers. The funeral will be live streamed.
Meanwhile, last December Jamie received a bravery medal courtesy of the Garda charity Little Blue Heroes.
They treated Jamie to a garda parade complete with flashing patrol cars with sirens, HSE ambulances and units of Fermoy Fire Brigade.
The charity has now paid tribute to little Jamie.
"Our thoughts and prayers are with all his family and friends. Ar dheis Dé go raibh a anam.
"Little Blue Hero laid to rest, he wore the uniform and gave his best, Little Blue Hero fought so brave every day, honour and courage every step of the way, Little Blue Hero smiled when you greet, now to take up duty on a heavenly beat, Little Blue Hero we will never forget and always remember the times we had met.
"Little Blue Hero under your care, watch upon us and your guiding light we will share."
Tributes also came in from Cork City Hospital's Children's Club, Grange Fermoy AC, Fermoy FC and Fermoy GAA club.
In December of last year, Helena said that their son had shown extraordinary resilience from birth.
"We never imagined we would have Christmas with him. He is fantastic.”
Helena and Mark and their teenage sons Jack and Lucas cherished the time they had with Jamie.
Helena said that that they cuddled Jamie as much as they could throughout his life.
She insisted that Jamie couldn't had had better "big brothers" than her remarkably kind and loving older sons.
Jamie is survived by his parents, brothers, grandparents Eileen Roche and John and Carol Murray, aunts, uncles, grand aunts, grand uncles, cousins, neighbours, classmates at Holy Family School Charleville and his beloved Nurses Jen, Joanne, Breda and Aly.