A CORK mum who had previously been told by doctors to take her daughter home to die is now looking forward to the best days of their lives.
Campaigning mum Vera Twomey said she is looking forward to a “very special Christmas” with her daughter Ava who is finally free of seizures after eight years.
Ava has been reunited with her entire family for Christmas after winning the toughest battle of her life to secure access to medicinal cannabis.
Dad Paul and siblings Sophia, Michael and Elvera Mae welcomed Ava back to the family home in Aghabullogue after a huge campaign to secure access to medicinal cannabis which saw her mum walk from Cork to the Dáil and Ava temporarily relocate to the Hague in the Netherlands for life-saving treatment.
Ms Twomey said: “These are the best days of my life. We've been fighting Dravet syndrome and seizures for eight years. For the last two we've been fighting to keep her alive.
"We were told to take her home to die. We were told to make her comfortable."
Eight-year-old Ava suffers from Dravet Syndrome, a rare form of epilepsy that was causing her to have up to one hundred seizure a week.
After two years of campaigning and a temporary move abroad, the family are reunited at last and are looking forward to what they say will be a “very special Christmas."
Minister for Health Simon Harris finally granted access to the treatment in recent weeks and Ava has been making remarkable progress since, according to her mum.