THE family of a west Cork boy born with a rare terminal condition are fundraising for a car which is wheelchair accessible.
David O’Driscoll from Skibbereen, who will be five years old in June, was diagnosed with Lissencephaly, after a brain scan and MRI. His parents Mary and Patrick had concerns that he was not meeting milestones and he was diagnosed in May 2016.
Lissencephaly is a condition which results in a very smooth brain and leads to a range of difficulties. There is no cure for it.
In David’s case, he is non-verbal, previously suffered seizures, and cannot walk.
He is currently on medication to prevent seizures.
Children with the condition have a life expectancy of 10 years, but mum Mary said this is something she tries not to think about.
She knows of one other child with the condition.
She added: “He is my everything and I cherish each day I have with him.”
She said a wheelchair-accessible car is vital for David.
She elaborated: “I am driving a Toyota Corolla and he is in a car seat in the back. He is getting heavier and he is getting taller now though.”
She added that being able to use a wheelchair-accessible car would make travelling more comfortable for her son, as sitting in his wheelchair would provide support for his spine.
David is a junior infants pupil in St Joseph’s national school in Skibbereen.
The family is aiming to raise €20,000 and a page has been set up on GoFundMe.
Mary said events will also be organised as part of the fundraiser campaign.
To donate to the fund, visit https://www.gofundme.com/adapted-car-for-david039-s-needs.