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Speaking about her son, Grainne said he is coping as best he can: “He has moments where he is fed up, bored or wants to go home and that is perfectly understandable.” 

Ms Lynch, who also has a 14-year-old daughter Maeve with her husband David, said the whole family is under a lot of stress.

“David and I take turns at the hospital, it is not an ideal scenario, but you just have to get on with things, this is what we are faced with, this is what we have to do.” 

Grainne said the worst thing for her and for Liam is the waiting.

“We were told two weeks ago Liam was being transferred to Crumlin where his care team would make a decision on whether or not he needs to have his leg amputated or to have a skin graft procedure. All the waiting is hard. If things just happened it would be a lot easier.” 

As well as this, Liam picked up a hospital bug and is now in a room by himself in isolation. This bug may affect his place on a list for surgery.

Discussing the situation, Ms Lynch said that what she would like to see is a separate fund for growing children in wheelchairs so that no one else ends up in this situation.

“The current system is stupid. You could be waiting over a year for a chair in Cork and all the time the child is growing. It doesn’t make any sense.” 

“Even once an application for funding for equipment is approved, there may be a lead time before manufacturers can deliver an order, and unfortunately, this is beyond our control," the HSE said in a statement in February. “We sincerely regret that the funding available to us for this type of equipment is limited, and does not meet demand." 

The Lynch family are fundraising for Liam and his care and the public can donate at the Liam Lynch Fund on www.gofundme.com.

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