Holly and her mum said they don’t mind the picture being used to spread awareness but are incensed it was used as clickbait.
“We know people whose kids are going through the same thing and we’d like to be able to give them hope,” said Martina.
The 24-year old had a message for the anonymous person behind the page.
“I would ask them what made them do this,” Holly said. “This wasn’t a nice thing to do. It was very personal.”
She urged Facebook to adopt tighter security measures to ensure their user’s privacy.
“Facebook will have to do something,” she added.
She spoke of the supportive messages she has received on social media since opening up about the issue.
“A lot of people were messaging me asking if I was OK. People were very good.”
Holly is keen to put the experience behind her and hopes to continue advocating for people with disabilities.
This comes a few months after she had called for the earlier detection of scoliosis in cerebral palsy sufferers.
She had felt the need to raise awareness after being left bed-bound by the condition for a year and a half before undergoing surgery in June 2018.
In an article published in The Echo last February, Holly explained that complications from her cerebral palsy made her scoliosis harder to detect, resulting in devastating consequences.